- We have just released a new on-line tool called IRB Wizard. This allows organizations in the USA to evaluate the re-identification risk from basic demographics. This is similar in principle (although the modeling approach is quite different) to the Canadian REB Wizard tool. The IRB Wizard allows risk assessments nationally or by state. For each combination of demographics and 'bin' size, it will give you an estimate of the population at risk (i.e., population in bins of that size or smaller).
You can find IRB Wizard here: http://www.ehealthinformation.ca/irbwizard/
If you want more information about how the estimates were calculated please drop me an email (firstname.lastname@example.org). We are writing a paper on this, so we have not included all of the technical details in the user manual. Also, we are currently adding more variables to the IRB Wizard and you should see these coming out incrementally over the next few months.
- On March 30th Anita Fineberg, a well known privacy lawyer in Toronto, will give a webinar on the use of health card numbers in Ontario. This is an issue that has come up quite often. There seems to be some confusion about whether health card numbers can be collected and used in the context of clinical research. They are appealing because they essentially provide a unique identifier for all citizens. However, there are legal restrictions that also need to be considered. In the webinar entitled "Why A Health Number is Not an Ontario Identification Number" Anita will discuss these restrictions and provide guidance for researchers and research ethics boards about what they should (and should not) do.
You can register for this webinar here: https://www.ehealthinformation.ca/survey/webinarmarch302011.aspx
- The recording from the recent webinar we hosted entitled "Towards Privacy and EHR Information Flows in Canada" by Joan Roch from Canada Health Infoway is now available on-line. This presentation talked about the work by the jurisdictions in Canada on data privacy and the exchange of health information. The material is available here:
- The recording from the recent webinar we hosted entitled "Towards Greater International Transparency of Clinical Trials – Short Term Efforts for Long term Benefits: CIHR Trial Policy 2010" by Karmela Krleza-Jeric from CIHR is now available on-line. This covered the most recently updated CIHR clinical trials policy and its stipulation to make individual-level participant data publicly available. The material is available here:
Please feel free to pass on the information in this Lab Newsletter to your colleagues and associates.